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主页 语言 什么是亨廷顿舞蹈症? 初次接触亨廷顿舞蹈症? 寻找资源 亨廷顿氏病研究 寻求帮助 关于青年亨廷顿舞蹈症组织 商店 儿童 青少年 青年 父母和家庭 青年发病的亨廷顿舞蹈症 Friends 专业人士 捐献 隐私 联络我们

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HDYO Ambassadors

2021年11月24日

Huntington's Disease Youth Organization

HDYO通过以下网站为年轻人、父母和专业人员提供有关亨廷顿氏病的广泛信息:

www.hdyo.org

Our Ambassadors are a group of young people from across the globe. They are leaders and advocates in the HDYO community. The aim of the group is to volunteer, raise awareness of HD and fundraise for HDYO.

The group launched in April 2021 and meet each month. They are truly global coming from Canada, South America, US, Europe, Australia and The Middle East.

They share their experiences and aim to connect the HD community to show they are not alone. They are focusing on a number of campaigns throughout the year including sharing Top Tips to help others, outlining their own journeys, developing fundraising campaigns, to keeping their fingers on the pulse of the latest in HD.

Our Ambassadors want to connect the entire global community. We’re always looking for more people to help. Please join us - email info@hdyo.org to get involved. #JOINOURCREW

Here are some of our Ambassadors. Some choose to remain unpublished for personal reasons or help out in more anonymous ways.

HDYO Ambassador Ana
Portugal

HDYO Ambassador Angela
Australia

HDYO Ambassador Anne
Columbia and Sweden

HDYO Ambassador Ashley
Northern Ireland

HDYO Ambassador Bhairavi
US

HDYO Ambassador Brittany
US

HDYO Ambassador Bruce
Scotland

HDYO Ambassador Bruna
Brazil

HDYO Ambassador Caitlin
Canada

HDYO Ambassador Cara
England

HDYO Ambassador Carly
Wales

HDYO Ambassador Charlie
Wales

HDYO Ambassador Charlotte
England

HDYO Ambassador Claudia
Italy

HDYO Ambassador Crystal
US

HDYO Ambassador Emma
Latvia

HDYO Ambassador Emma H
England

HDYO Ambassador Emily F
England

HDYO Ambassador Jamie
England

HDYO Ambassador Jenny
England

HDYO Ambassador Jordan
Scotland

HDYO Ambassador Jozefine
Sweden

HDYO Ambassador Lindsay
Canada

HDYO Ambassador Lorena and Nelson
Chile

HDYO Ambassador Mackenzie
Canada

HDYO Ambassador Niamh
Ireland

HDYO Ambassador Robyn
England

HDYO Ambassador Sadie
Canada

HDYO Ambassador Sarah
US

HDYO Ambassador Tatiana
Brazil

HDYO Ambassador Tess
Sweden

HDYO Ambassador Zoe
Scotland

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儿童 青少年 青年 父母和家庭 青年发病的亨廷顿舞蹈症 Friends 专业人士