主页 语言 什么是亨廷顿舞蹈症? 初次接触亨廷顿舞蹈症? 寻找资源 亨廷顿氏病研究 寻求帮助 关于青年亨廷顿舞蹈症组织 商店 儿童 青少年 青年 父母和家庭 青年发病的亨廷顿舞蹈症 Friends 专业人士 捐献 隐私 联络我们

我们还没有把这个页面全部翻译出来,但你可以点击 "Recite Me",然后点击有旗帜的圆圈按钮,就可以看到翻译。




Huntington's Disease Youth Organization



General Huntington's Disease Websites

Huntington's Disease Research

  • HDBuzz - A website for people from families affected by Huntington’s disease to learn about the latest research in an easy, understandable manner.
  • Enroll-HD - The official website for Enroll HD, a worldwide research study that almost everybody from a family affected by Huntington’s disease can join and participate in.

Youth Websites

  • YPAHD - The Huntington’s Society of Canada’s official youth group, where Canadian youth can join up and receive support.
  • NYA - The Huntington’s Disease Society of America’s official youth group, where American youth can join up and receive support.
  • Scottish Huntington's Assoication - Youth - The Scottish HDA’s youth website.

Huntington's Disease Associations & Organisations


  • CHDI - The Cure Huntington’s Disease Initiative. They are a not-for-profit research organization devoted to developing drugs that will slow the progression of Huntington’s disease.
  • EHDN - The Euro-HD Network website, with lots of information about research studies and study sites throughout Europe.
  • FACTOR-H - involves people coming coming together to help people affected by Huntington’s disease and living in conditions of extreme vulnerability.
  • IHA - The International Huntington’s Association’s website. A worldwide organisation that provides support to Huntington’s Disease Associations.
  • Hereditary Disease Foundation - The Huntington’s Disease Foundation have been supporting Huntington’s disease research for many, many years.
  • HSG - HSG: The Huntington's Study Group is a global research group for HD made up of professionals and clinics around the world who conduct studies and trials for HD.



儿童 青少年 青年 父母和家庭 青年发病的亨廷顿舞蹈症 Friends 专业人士